Wednesday, April 25, 2012

Day +6. One Day at a Time.

Prep for Transplant
Bag-o-Marrow and Blood
Day +6
 6 days after transplant, Ryan is home in Connecticut and Cole is feeling pretty well in the hospital.  Ryan and Cole were both transplant champs and now are Bone Marrow Brothers for Life.  Ryan had very little reaction to the procedure outside of sleeping for about 20 hours afterwards while the anesthesia wore off and his body regenerated marrow. 

Ryan Pre-Op

Since transplant, Cole has been doing great.  He hasn’t lost his hair and hasn’t gotten too puffy from the steroids.  He hasn’t been too sick and he’s managed to stay virus and infection free, which has kept him out of the ICU.  He hasn’t gotten any mouth sores or had any shedding of the lining in his digestive system.  We know this could change in an instant, so we are reluctant to celebrate just yet.   
Cole's immune system is still completely gone – so the chemo did its magic.  His white blood cells, platelets and other key indicators are all hovering around zero.  Typically, white blood cells start to produce over the next 4-12 days.  Then we test if the cells are Cole’s or Ryan’s.  From there, it’s a slow, long road to getting the rest of his numbers back to normal and trying to keep him virus free.  We remain hopeful that we can have him home in time for his birthday in October, or at least by the holidays.     

Ryan Post-Op

We continue to take it day by day.  So far, the doctors are pleased with his progress and his spirits are generally good.  As long as he’s good, we’re good.  It’s hard to believe it’s already been over a month.  We miss the two older kids immensely as well as family and friends.  We look forward to continued progress and being together again as a family unit. 

19 comments:

  1. Praying for continued good news. Sending you good thoughts and peace as you go through recovery and isolation. Although necessary to get healthy isolation must be very difficult. You are all very strong and an inspiration.

    Tracy Bertonazzi

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  2. Hang tough gang....hang tough.

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  3. Our thoughts are with you all. Ryan, we are so very proud of your strength and how you have helped your brother.

    Cole, here is our happy thought/joke for the day:
    How did Batman find Spiderman's address? He searched the world wide web!

    Janet, we are so impressed with your strength. We are reminded of Baba who, although she was often scared, did everything and then some for her children and later her grandchildren.

    Jeff, we send our grateful prayers that you continue to keep your family solid and whole.

    Love from Cape Cod.

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  4. Hi Cole!

    I'm a friend of your Aunt Alisa and Uncle Jeff's in North Carolina. We love reading your blog updates and hope you're feeling alright. We think of you every day, but know you're a total champ who is rocking chemo like no little boy can! (your aunt and uncle told us you're pretty much indestructible!) Hang tough, little man!

    Mary Vaca

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  5. We wanted to say hello to CARTER also. Though you could not donate to your brother, we know for certain that you would have if you could have. Because of circumstances we have been writing to Cole and Ryan but we have not forgotten you.

    You are a kind, intelligent, strong and compassionate girl who is special to us because you are you. You bring joy to us and are a role model as well as big sister to your brothers. Keep things stable at home while mom is away. That is a huge job to fill.

    Love to Carter from Cape Cod.

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  6. GLAD FOR THE UPDATE ON YOU AND YOUR FAMILY. YOU ARE ALWAYS IN OUR PRAYERS. HOPE YOUR HAVING A GOOD DAY LITTLE BUDDY. DO YOU LIKE FOOTBALL. WHAT SPORT DO YOU LIKE TO PLAY ? DO YOU LIKE TO FISH? TAKE CARE LOVE YOU AUNT DOT

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  7. Oh I am so glad to have seen the link to this blog. I have been thinking and praying for all of you. Histio weighs so hard on the entire family. Sounds like you r one strong family. hang in there, the light is coming round the bend. hugs and prayers from nj.

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  8. Wishing you continued good thoughts, you are continually in our prayers. You are an amazing kid Cole, with a fantastic family!

    Love Diane, Steve, Noah and Conner

    P.S. What do you call a train that sneezes? Achoo-choo train

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  9. Thank you for these updates... Keeping you in our thoughts and prayers. Stay strong!

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  10. well, you have just passed over another difficult hurdle. so glad to hear this portion went so well! give that hero ryan a huge hug from us when you see him.

    the fangs

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  11. Hi Colie;

    Knock, knock!! Who'se there?
    Boo! Boo who?
    Don't cry.

    Love

    Granpy

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  12. Hi Jeff, Janet, Carter, Ryan and Cole,
    Just catching up on the Blog and wanted to say hi. You are in my thoughts and prayers everyday. As my Quaker friends would say, I'm holding you in the light.

    Also a joke:
    How to you wake up Lady Gaga?

    Answer: you Poke-her-face.

    Kind of lame but I thought you might like it.
    Love Rosa

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  13. Jeff & Janet,
    Just heard about Cole and wanted to let you know our thoughts and prayers are with you! You should have let us know!! The more prayers, the better. We may not be right next door anymore, but please DO NOT hesitate to let us know if we can help in any way...honestly. We pray Cole strengthens quickly and is soon back to his old self. Keep the faith-
    Love,
    Christine, Geoff, Demi & Anastasia Perry

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  14. Here's some jokes for ya Cole-y:

    How do you get a peanut to laugh?
    You crack it up!

    How do you communicate with a fish?
    You drop it a line.

    What is a kitten's favorite color?
    Purrrrrrrrrple

    What did the egg say to the frying pan?
    You crack me up!

    XOXOXOXOXO - Love you!
    Aunt Heidi

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  15. hey cole youre doing great dude. cant wait to see you! YOU THE MAN!!

    -drew siegel

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  16. Hey Cole

    What is black and white and red all over

    A sunburned penguin

    Luv
    Carter

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