Let's Do This

Cole has nearly finished his first week of pretty intense physical tests, scans, poking and prodding. He's been an absolute champ, not needing sedation for his MRIs. The nurses have been amazed at his ability to lie still relative to other 5 year olds. I explained that Cole's fear of needles is a great motivator.

Yesterday was a particularly difficult day. One of his scans found an abnormality on his spine, which the doctors thought may be a tumor. That would be devastating this early on in treatment, and would require a much more intensive course of action, significantly reducing his odds. Ultimately, our doctor declared it a "hot spot" and found no damage in the bone, leading her to believe it's not a malignant tumor. I've learned there are code words, looks and phrases used by doctors and nurses. Some to communicate with each other, some to protect themselves and some to prepare families for worst case scenarios. I'm hopeful that this instance was just a doctor being overly cautious.

I also experienced true helplessness yesterday as I watched Cole get a brain scan. He was strapped to an MRI machine with cords attached to nearly every inch of his body. As he entered the MRI tube, I could no longer hold his hand or speak to him. He was on his own and I couldnt do anything to help. Fortunately, he was a champ.

One nurse underscored how important attitude is during this process. For the patient and the family. Cole remains incredibly positive and focused on one mission - getting well. Before each procedure, he says "let's do this". and often reminds everyone to "man up" when theyre upset. Like his disease, he's one in a million.